UPSC CURRENT AFFAIRS

India is emerging as a potential hub for rare-disease drug development and manufacturing. 

The Union Ministry of Health and Family Welfare has proposed an amendment to the Drugs Rules, 1945 to strengthen regulatory oversight over prescription medicines.

Recently, the U.S. Food and Drug Administration (FDA) approved Zanvastro (zilganersen) for the treatment of Alexander disease, making it the first approved disease-modifying treatment for this rare genetic neurological disorder in adults and children.

The Maharashtra Public Health Department has declared snakebite a “notifiable disease”, making it mandatory for government and private hospitals, medical colleges and medical practitioners to report suspected, probable and confirmed snakebite cases, as well as deaths caused by snakebites.

The National Organ and Tissue Transplant Organisation (NOTTO) has launched a real-time national organ transplant portal and mobile application to create a unified nationwide waiting list, ensure transparent organ allocation, facilitate Aadhaar-linked organ donation pledges, and improve coordination among hospitals and states.

The West Bengal Health Department has launched a Mass Drug Administration (MDA) campaign against Lymphatic Filariasis (LF).

Recently, scientists have made significant progress in research on exosomes.

Researchers from Punjabi University, Patiala and PGIMER Chandigarh have developed AI-based diagnostic tools for identifying Autoimmune Blistering Diseases (AIBDs).

Recently, the Union Minister for Science & Technology dedicated the UMMID Programme, a national initiative aimed at improving healthcare services for individuals and families affected by inherited and rare genetic disorders.

The World Health Organization (WHO) recently declared the Ebola outbreak in Democratic Republic of Congo (DRC) and Uganda a Public Health Emergency of International Concern (PHEIC). Global Health Governance.